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Woman with rare skin condition overcomes negativity and finds true love

Thanks to the rise of social media, we’re all bombarded with images of seemingly perfect-looking people; it seems as though the world has become even more shallow in how people are judged.

The world can appear incredibly cruel to those of us who don’t match the stereotyped “perfect” pattern when total strangers feel compelled to judge someone based only on how they appear on social media.

Nobody is more aware of this than Karine de Souza. Due to her uncommon skin condition, the Brazilian woman has spent her entire life using SPF100 sunscreens on her skin, even while she is indoors.


The 33-year-old has Xeroderma Pigmentosum, a condition that puts her at a high risk for developing skin cancer.

She is extremely sensitive to UV rays because of her “one-in-a-million” ailment, which is incurable and prevents her from being able to repair whatever skin damage the sun may have done.

She can get a sunburn that is excruciatingly painful after only a few minutes in the sun. Because it was too risky for her to spend a lot of time outside her home as a child, she was frequently cut off from the outside world.

“I don’t feel anything when I expose myself to the light; it doesn’t happen immediately. The lesions do, however, later develop and require removal due to malignancy, she said.

Karine has undergone 130 surgical procedures, including the amputation of her lower lip and a portion of her nose, to eliminate sores brought on by the sun.

However, she has to go through more than just a physical struggle. Karine frequently receives strange looks while walking down the street and has endured online and offline verbal abuse.

She has even found love, yet she still maintains a positive outlook on life.

On social networking, she met her husband Edmilson, who was captivated by her “story and her strength.” Since Edmilson has always supported Karine, he is certain that he wants to live out the rest of his days with her.

He also chose to include the three kids from Karine’s former marriage, which naturally meant a lot to Karine.

She claims that “he came and he taught me that I could live a true love tale.”

But after sharing pictures of the two of them online, Karine was once more the target of a barrage of derogatory remarks.

According to the Daily Mail, Karine stated, “We have already seen several unpleasant comments calling me a monster, disfigured, or a zombie.”

Some remarks implied that their romance wasn’t real, Karine was a “sugar mommy,” and that she must be incredibly wealthy.

People were drawn to him because he is young and attractive, and they didn’t think he would be with me since he really liked me, Karine added.

A photographer who photographed the pair after their engagement uploaded some of the photos online with the following caption:

“In a society where outward appearances are more important than inner feelings, they did not meet by accident; rather, a gathering of souls resulted in an encounter of acceptance, character, and love. Today, you are an inspiration to so many people who lack faith in themselves, in life, and especially in love.

“I appreciate you being who you are every day. STOP whining about how you are what you are. Accept life and yourself with a HUG. Thank you very much for teaching me so much. You two are incredible. For so many individuals, you represent the lost hope. I appreciate the warm embrace as well as the fantastic day we shared. I’ll always keep your smile in mind.

His heartfelt words and beautiful images he captured of Karine and Edmilson went viral, and thousands of people commented, congratulating the couple.

Karine wants others to understand how important being optimistic is.

She advised, “Be joyful and smile since life only comes around once.”

Karine and Edmlson were overjoyed to welcome a baby girl into the world in 2023. Zaia was a long-awaited addition to their family because Karine and her husband had been trying to conceive since 2020.

Karine has been through so much but thanks to her positive attitude she has found the happiness she deserves.

Her story is inspirational so help us inspire others in similar situations by sharing this story with your friends and family.

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